Rare Diseases: online Ressourcen

von Mark Buzinkay 

Eine detaillreiche Übersicht zu eher selten auftretenden Krankheiten bietet die Rare Diseases Resource Page:

The purpose of this Rare Disorders Resources page is to present an overview of rare disorders as a subject area and to create a selective bibliography of diverse resources that will aid patients and professionals. This Web site is intended to assist individuals, families, librarians, and health care professionals seeking information on behalf of patients.

The majority of Web sites provided are meta-sites that are clearinghouse resources of terminology, medical information, and links concerning many disorders rather than individual diseases. In many cases these Web sites point the end user to links that lead to Web sites devoted to specific diseases. Four of the annotated Web resources lead to information about clinical trials that are being conducted in the United States.

Eine Alternative (allerdings nicht zu seltenen, sondern eher häufiger auftretenden) Krankheiten bietet iMedix.

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